Dear Phillip;
It happened again: the ball dropped in Times Square and a new year has started... without you. It is really quite unbearable. Your New Year's Eve hat says 2008. Last night they wore 2014. Has it really been 6 years since you sat in the frigid weather with Eric and thousands of other people to bring in the new year?
The latest FARA news includes a study that quantifies the deterioration in the optic nerves of Friedreich's Ataxians; further reminding me just how hard you had to work at everything - even seeing. I wish I could tell you how brave you were. Did I ever do that? Did I tell you that enough? I doubt it. You were SO incredibly brave. You greeted every day with a smile, even though you knew that the entire day would be a series of struggles.
I will wait. And wait. But I am Standing on the Promise that I will get to tell you how brave you were. And how much of a blessing you were in my life.
I miss you so much.
Mom
